RESUMO
Introducción: El estudio tuvo como objetivo explorar la calidad de vida de las personas con enfermedad de Parkinson durante el confinamiento por la pandemia de coronavirus de 2019 (covid-19). Material y métodos: El estudio fue de carácter cuantitativo, descriptivo y correlacional. La muestra fue de 51 personas con enfermedad de Parkinson de la región de Magallanes y Antártica Chilena, y cuya información fue recogida desde la base de datos de la Corporación de Rehabilitación Club de Leones Cruz del Sur, a la cual pertenecen. Resultados: Los principales resultados muestran que el 51,6% de las personas manifiestan una calidad de vida «buena y muy buena» y que los principales dominios del Parkinson's Disease Questionnaire (PDQ-39) afectados son: malestar corporal, movilidad y bienestar emocional. Según el análisis de los rangos cualitativos del PDQ-39, las dimensiones que se mostraron más comprometidas durante el confinamiento por la pandemia por covid-19 fueron: comunicación, estigma y bienestar emocional. Además, las mujeres presentaron peor calidad de vida que los hombres. Por último, se demostró que la progresión de síntomas afecta la calidad de vida de las personas con enfermedad de Parkinson. Conclusiones: Durante el confinamiento por la pandemia por covid-19 las personas con enfermedad de Parkinson aumentaron los síntomas y presentaron una menor calidad de vida, sobre todo las de sexo femenino.(AU)
Introduction: The study was aimed to explore the quality of life of people with Parkinson's disease during confinement due to the coronavirus infectious disease 2019 (covid-19) pandemic. Material and methods: The study was quantitative, descriptive and correlational. The sample was 51 people with Parkinson's disease, from the region of Magallanes and Chilean Antarctica, and whose information was collected from the database of the Rehabilitation Corporation Club de Leones Cruz del Sur, to which they belong. Results: The main results show that 51.6% of people with Parkinson's disease report a «good and very good» quality of life and that the main domains of the Parkinson's Disease Questionnaire (PDQ-39) affected are: body discomfort, mobility and emotional well-being. According to the analysis of the qualitative ranges of the PDQ-39, the dimensions that were most compromised during the confinement by the covid-19 pandemic were: communication, stigma and emotional well-being. In addition, women had a poorer quality of life than men. Finally, it was shown that the progression of symptoms affects the quality of life of people with Parkinson's disease. Conclusions: In conclusion, during the confinement due to the covid-19 pandemic people with Parkinson's disease increased symptoms and presented a lower quality of life, especially women.(AU)
Assuntos
Humanos , Masculino , Feminino , Doença de Parkinson/reabilitação , Qualidade de Vida , /complicações , Quarentena , Atividades Cotidianas , Pesquisa Qualitativa , Epidemiologia Descritiva , Correlação de Dados , Chile/epidemiologia , /epidemiologia , Inquéritos e Questionários , Estudos TransversaisRESUMO
INTRODUCTION: The study was aimed to explore the quality of life of people with Parkinson's disease during confinement due to the coronavirus infectious disease 2019 (covid-19) pandemic. MATERIAL AND METHODS: The study was quantitative, descriptive and correlational. The sample was 51 people with Parkinson's disease, from the region of Magallanes and Chilean Antarctica, and whose information was collected from the database of the Rehabilitation Corporation Club de Leones Cruz del Sur, to which they belong. RESULTS: The main results show that 51.6% of people with Parkinson's disease report a «good and very good¼ quality of life and that the main domains of the Parkinson's Disease Questionnaire (PDQ-39) affected are: body discomfort, mobility and emotional well-being. According to the analysis of the qualitative ranges of the PDQ-39, the dimensions that were most compromised during the confinement by the covid-19 pandemic were: communication, stigma and emotional well-being. In addition, women had a poorer quality of life than men. Finally, it was shown that the progression of symptoms affects the quality of life of people with Parkinson's disease. CONCLUSIONS: In conclusion, during the confinement due to the covid-19 pandemic people with Parkinson's disease increased symptoms and presented a lower quality of life, especially women.
Assuntos
COVID-19 , Doenças Transmissíveis , Doença de Parkinson , Masculino , Humanos , Feminino , Qualidade de Vida/psicologia , PandemiasRESUMO
La situación sanitaria generada por la aparición de la COVID-19 ha precipitado el uso de nuevas tecnologías y la adaptación de los servicios de rehabilitación de todo tipo. Objetivo: Describir la implementación de un sistema de telerehabilitación en pacientes con diferentes diagnósticos de discapacidad que viven en alta latitud sur, durante la pandemia de COVID-19. Métodos: Se implementó un sistema de terapias personalizadas guiadas mediante videoconferencia para pacientes con diferentes diagnósticos de discapacidad. Los pacientes se agruparon en tres grupos etarios (menores, adultos, adultos mayores) y seis tipos de diagnóstico clínico (afecciones originadas en el periodo perinatal, enfermedades del sistema circulatorio, enfermedades del sistema nervioso, enfermedades del sistema osteomuscular y del tejido conjuntivo, tratamientos mentales y del comportamiento y otro tipo de diagnósticos). Se evaluó el diagnóstico del paciente, el tipo de atención requerida, el número de sesiones y el nivel de satisfacción de cada usuario en función de la telerehabilitación que recibieron. Resultados: Participaron 101 pacientes con edad promedio de 31±26 años, siendo el 52,5% de estos del sexo masculino. Todos ellos logran manejar tecnologías mínimas requeridas para la atención por telerehabilitación. Existe un grado de asociación entre el diagnóstico del paciente y el grupo etario (p<0,05), así como también entre el diagnóstico y el tipo de atención requerida (p<0,05). Tras la implementación, los usuarios y usuarias evalúan positivamente la terapia a distancia. Conclusiones: La telerehabilitación puede ser implementada en pacientes con discapacidad en zonas de alta latitud sur, respetando las diferentes etapas del proceso, para asegurar una correcta ejecución.
The health situation after the emergence of COVID-19 has precipitated the use of new technologies and the adaptation of rehabilitation services of all kinds. Objective: To describe the implementation of a telerehabilitation system in patients with different diagnoses of disability living in the high southern latitude during the COVID-19 pandemic. Methods: A system of personalized therapies guided by videoconference was implemented for patients with varying diagnoses of disability. The patients were grouped into three age groups (Minors; Adults; Older Adults) and six types of clinical diagnosis (conditions originating in the perinatal period, diseases of the circulatory system, diseases of the nervous system, diseases of the musculoskeletal system, and connective tissue, mental and behavioural treatments and other diagnoses). The patient's diagnosis, the type of care required, the number of sessions, and the level of satisfaction of each user were evaluated based on the telerehabilitation they received. Results: 101 patients with an average age of 31±26 years participated, 52.5% were male. All of them managed to handle the minimum technologies required for telerehabilitation care. There is a degree of association between the patient's diagnosis and the age group (p<.05), as well as between the diagnosis and the type of care required (p<.05). After implementation, users positively evaluated distance therapy. Conclusions: Telerehabilitation can be implemented in patients with disabilities in areas of high southern latitude, respecting the different stages of the process, to ensure it is correctly delivered.
